Support & community
Trusted organizations and communities for people living with inflammatory bowel disease, an ostomy, or a J‑pouch — and for their families.
Foundations & nonprofits
The leading U.S. IBD nonprofit — patient education, local chapters, in-person and virtual support groups, and the IBD Help Center (1-888-694-8872).
Support, advocacy, and community for anyone living with an ostomy or pouch.
Support and advocacy for Black, Indigenous, and people of color living with IBD and chronic digestive disease.
Peer community building confidence and connection for women living with IBD and ostomies.
Online communities
Patient-run online community and forum for candid, day-to-day IBD support.
Patient-run forums for people with, or considering, a J-pouch (IPAA) — general discussion, pouchitis, diet, and peer support.
Support groups & meetups
Monthly virtual peer-support group, first Thursday at 7 p.m. ET. Email [email protected] to join.
UK pouch-patient charity with stories, resources, and peer support.
Find a local ostomy or pouch support group anywhere in the U.S.
International
UK charity — information, local networks, and a confidential helpline.
Canadian IBD charity funding research and supporting patients and families.
European Federation of Crohn's & Ulcerative Colitis Associations — the umbrella of national patient organizations across Europe.
External resources are independent of the Holubar Lab; listing does not imply endorsement. Always verify with your own care team.